Dear Dr. Fan, 02/18/2010
My name is L…… I have a 9.5 years old daughter who has dystonia since she was about 6 years old. The dystonia started with her right leg, and now also affect her left leg.
She also has mild dystonia on her eyes and mouth. Since the dystonia started, Josephine has been having problem with walking. Her feet turned inward and also stiff.
She walks very very slow, and her gait makes it even worse. She also gets a lot of headache.
Her neurologist prescribed her Artane for the dystonia, and she has been taking it until today.
I look forward to have alternative treatment such as acupuncture, and Chinese herbal medication. For right now I can not take her outside California to visit your clinic, but I am working on it to be able to take her seeing you. However, I would like her to get Chinese herbal medication and start taking it asap.
I am still working on having her video and sending it to you. Please respond to me about how we could get her Chinese herbal medication. Her insurance will not cover this alternative treatment, so we will pay by ourselves. So please also let us know the cost of the medication.
Thank you very much for returning my call this morning. I have a very high hope after reading your website. I realize dystonia is not something that can be cured, but at least if it can be mild it will mean so much for my daughter’s life. Looking forward to hearing from you.
The Reply from Dr. Arthur Fan 02/19/2010 9:00AM
That is correct. Almost all of treatments for dystonia in conventional medicine is symptom treatment (no cure). Using Chinese medicine, acupuncture plus herbs, it is also very hard to be cured in a short time. However, we do have some patients “cured”!
That does the “cured” mean in dystonia?
Answer: most of dystonia symptoms gone and just need mild herbal medicine or acupuncture maintenance. The treatment for that aim is at least 6 month to one year, or even more.
These treatments are not payable from your insurance in current time. And you need patience.
Please give me her other information:
Appetite, bowel movement condition, sleep condition.
Tongue color–coating (white? yellow? thin or thick) and tongue color(pink or very red),
Pulse (you could let a local acupuncturist have a look).
For more information, such as how much the fees for herbs, capsule, etc. You could read the detail online in my blog.www.arthuryinfan.wordpress.com(dystonia part)
Arthur Yin Fan, PhD,CMD,LAc