Guillain-Barre Syndrome (GBS) is one of common illnesses in neurology, generally it may be related to auto immuno inflammation in peripheral nerves, GBS usually also called Acute Inflammatory Demyelinating Polyradiculoneuropathy (AIDP), occationally GBS also has chronic condition, called Chronic Inflammatory Demyelinating Polyradiculoneuropathy(CIDP). Acupuncture and Chinese Herbology are very effective therapies in GBS acute stage and recovery stage.
Here are several case studies or patients’ testimonies.
Patient 1. Mr. J.A.A. 49 years old.
(He aggreed to publish this case study, and he said we could use his real name, but we still use his name’s initial here).
First visit (10/15/2005): Main complain are weakness and tingling in both legs 8 month. Patient had spleen removal surgery last year because he had continuous decreasing in white blood cells and platelet. In the early Janurary patient had left-sided facial weakness and apparent facial droop, as well as numbness and tingling in hands and feet. One month late, the facial palsy recovered, the numbness, tingling worse in hands and feet, since Feburary patient has obvious weakness in both legs, couldn’t walk normally. He was admitted in hospital and had five dose of IVIG treatment because of his acute neuropathy consistent with Guillain Barre syndrome. He felt the treatment improved his weakness about 5%.
When patient saw Dr. Fan, patient just could walk 50 feet with the help of his wife. He had difficulty to move in or out of his car, he had steppage gait. Both hands and feet numbness, tingling and tight. Taking pain killer to ease the multiple-site muscle pain. There were obvious muscle weakness at right upper back and four extremities. Sometime patient dropped the dishes or other stuff because the hand weakness and short of sensation (esp. right hand no. 3, 4 fingers and inner side of forearm). There was a muscle cramp at right leg almost everyday. Patient still took Vitmine B1, B2, B6 and shoot B12. PE: Tendon reflexion disappeared in four extremities; Muscle tone (++-); Sensation: pain-exist, touch-generally exist. Muscle force: both leg 4+. Hands 3+. Treatment: Acupuncture.
No.2 visit (10/18/2005): After initial acupuncture, patient felt the sensation at left hand and right foot seemed better. However, during next two days, the sensation still bed-numbness, tingling and pain. Right leg still cramp, esp.at waking up in the morning. There was a obvious purple marks at the front and sides of the the tongue surface, his pulse was string and slippery. Starting Chinese “herbal tea” (herbal decoction, the method of tonifying the Qi and dispelling the blood stagnant) with the electroacupuncture.
No.3 visit (10/25/2005): The weakness and numbness was “much less”. If the initial weakness as 100%, immediate after the no.3 acupuncture treatment, patient felt recovered 30%.
No.6 visit (11/02/2005): The sensation recoveral rate reached 40-60% (there was 20% fluctuation in different days). The recovery of right leg was a slight quicker than that of other extremities. Left hand still hard to hold the dish, often dropping dishes.
No.10 visit (11/15/2005): Patient felt he had more energy and could walk more longer distance ever. However, when he felt tired the weakness and nubness/tingling seemed worse than before. Continue the Chinese herbal tea and electroacupuncture.
No.12 visit (11/22/2005): Patient felt Dr.Fan’s treatment was very successful. Currently he could walk independently over one mile (at initial visit, he just could walk 50 feet with other’s help), could conduct almost every daily personal work, such as fastening the shoes’ tie. Could left 15 Lb (initial visit 2 Lb).
No.13 visit (11/27/2005): Currently, patient has one full-time job Monday to Friday, also has another part-time job in weekends. In weekdays evening, he also takes course in a college. These would be a big challege to him. Today after 8 hours working, patient felt very tire and felt glove sensation at hands and feet. Initially he just could work as part-time worker. But anyway, patient felt much better than before, he has more energy, could squat down and up freely (at initial visit, patient couldn’t do that). Patient quited all medications (such as vitmins and Licara which is for neuropathy). And patient’s sensation is more allert, now he could feel electrical sensation when acupuncture.
No.15 visit (12/03/2005): Patient danced into my clinic, which showed his improving in movement and balance, as well as in a good emotion. Continue electroacupuncture and Chinese herbal tea.
No.16 visit (12/06/2005): Patient evaluated his condition–has improved 65% (65% normal) since 10/15/2005.
No. 17 visit (12/10/2005): Patient danced into my office, he and his wife were very happy. His recovery rate reached 70% today. However, still had some numbness at fingers or/and toes. The tightness and tingling sensation at left foot bottom became occationally. Patient had more energy. Muscle force at both legs: 5. hands 5-. Muscle tone (++). Tondon reflex still poor(+-). The improvents were at: (1) Balance;Gait; (2) Muscle force; (3) Sensation; (4) Daily activities and fine work; (5) Working. (Note: Patient signed above evaluation and agreed to publish his case study.)
Patient 2. Ms. S. J. 43 years old.
First visit (11/24/2006): Main complain is Dyspnea, both legs weakness for two month. Patient had Guillain barre syndrome two month ago, initially she had dyspnea, heavy on chest, swollow difficulty and both legs couldn’t walk, tingling below the chest. Currently she could walk about one mile per day total half hour, but the gait abnormal, felt tired and short of energy. Hands shaking, couldn’t type the keyboard of computer, just could using three fingers. There was still heavy sensation in chest/breathing difficulty, couldn’t breath deeply. Basically patient’s muscle force: 4. Tendon Reflex (+-); Treatments: Acupuncture and Chinese herbal tea.
No.2 visit (11/28/2006): Felt better, could walk longer.
No.3 visit (12/02/2006): Big improvement, recovered 30% (baseline: initial visit as 100% weakness). Hands no shaking aleady 48 hours, both legs’ Touching sensation recovered, breathing almost normal,still had slight heavyness in chest.
No.4 visit (12/06/2006): Could walk 2.5 miles per time. Using fingers normally, esp. typing was normalized. The gait much better.
No.5 visit (12/09/2006): Hands no shaking, typing keyboard already normal. “Definit improved!” Patient said.
No.6 visit (12/12/2006): Much better. (1) whole condition, mainly the ability of movement: 70% recovered. If the score at first vist was 10, now 3. Could walking 3.5 miles in one hand half hour; (2) Sensation: arms sensation- recovered 80%, if at first visit it was 10, now 2. And from constant numbness/tingling to occationally, just in night; legs sensation- recovered 90%, score 10 dropped to 1. When acupuncture, patient could feel more sensative than before. (3) Chest heavy or breathing difficulty, recovered 80%, score 10 dropped to 2. (Note: Patient signed for above evaluation.)
No.10 visit (12/30/2006): Much better. Feel almost normal. But right leg is weeker than left.
No.12 visit (01/09/2007): Tendon reflex recovered good, currently: both elbows (+ to ++), knee (++), ankles (+- to +). Feels tired due to catching a cold. Sensation recovering is good, already amost normal.
Patient 3. Mr. W. W. 58 years old.
First vist (12/04/2006): Main complain is pain in both hands and feet, low energy for 3 years. Patient had GBS 3 years ago, at that time he couldn’t move and stayed in hospital for IVIG treatment 3 weeks, after that he also had 2 month treatments in a rehab center. Then his movement is recovered. But the pain, tingling and numbness in both hands/palms, and feet bottoms do not disappear. And the problem is even worse when he gets tired or short of sleeping. The pain, tingling and numbness would increase and spread up to elbows and knees. Also, when he gets tired, the movement also becomes poor. The issue is he is very easy to get tired and short of energy. The neurological examination generally is normal, included in both movement and sensation, except the tendon relexion(-) at extremities. Treaments: acupuncture and Chinese herbal tea.
No.2 visit (12/07/2006): much better.
No.3 visit (12/11/2006): almost hasn’t any pain, tingling and numbness in hands and feet bottoms. Seems have more energy.
No.4 visit (12/14/2006): no any symptom in hands, but there is numbness at feet bottom. “Due to some reason, today my energy is lower than the day before”. Tongue purplish, pulse thin. We modified the formula in Chinese herbal tea.
No.8 visit (01/02/2007): no any symptom and feels good, although slept late in new year patient didn’t feel low energy and tingling, nubmness and weekness on extremities. Patient decides terminate acupuncture and continue the Chinese herbal tea for stablizing his condition.
hello
i am a practitioner of TCM trying helping aGBS patient in intensive care unit in Israel. He is not doing well, he doesnt breath by himself, blood pressure very high, he is 70 years old. I need immediate consultation regard acupuncture and Chinese herbs. Thank you
tongue: purple + white and yellowcoat
pulse: full , much pressure taward the upper jiao, wiry
Dr. Baranovitch Ph.D dom L.ac
I need a little bit detail info. Such as how long of his GBS? pulse and tongue info, constipation?
Basically, you could think of two patterns:
(1) If tongue red, and with yellow think coating, constipation, and BP high, using:
Sang Ye 6g, Bai Ji Li 10g, Huang Qin 10g, Shan Zhi Zi 10g, Zhi Nan Xing 10g, (Fa) Ban Xia 10g, Chen Pi 6g, Fu Ling 10g, Jue Ming Zi10g,Gan Cao 3g. And Using An Gong Niu Huang Wan or Niu Huang Qing Xin Wan(add warm water and disturb it to “herbal tea”- like). Gavage 1-2 /day;
Of Course, if you have Qing Kai Ling, also good.
(2) If face pale, pulse week, tongue is not so red, you could use Bu Zhong Yi Qi Tang, such as
Huang Qi 15g, dang Shen 10g, Bai Zhu 10g, Chai Hu 6g, Sheng Ma 6g, Chen Pi 10g, Dang Gui 10g, Gan Cao 5g, Sang Ji Sheng 15g.
If he has constipation, use a little bit herbs such as: Jue Ming Zi, Gua Lou Ren etc. Important.
Acupuncture: use Hegu(2) Qu Chi(2), Zu San Li(2) first.
Hello,
Introducing myself, I am Vijay kumar SP, 37 years old male from Bangalore.
I was diagnosed with Guillain Barre Syndrome(AMAN variety) in October last year (2013). I was hospitalized in Sagar hospital Bangalore where I was infused with IVIG immunoglobins. Post the discharge, I have been undergoing physiotherapy at home for the last 15 months.
The recovery is progressive but slow & is happening in proximal to distal pattern. I am able to walk independently but with a slightly swaying gait. In the lower limbs: ankle, toes flexion & heel control are partial causing the swaying gait. The hip, knee, hamstrings are normal.
In the upper limbs: shoulder, elbow & wrist are almost normal but finger movements are still partial. The fine motor movements in the finger have not yet come.
I would like to know if Acupuncture & TCM treatment would improve my condition.
Are there any TCM clinics or hospitals in Bangalore, India where I could visit for consultation.
Kindly let me know.
Thanks
Vijay
+91 9980392392
Chinese medicine, including acupuncture and herbs, will help your condition. As long as you have a serious treatment, I believe you will have more recovery.
Arthur Fan
Thanks for your kind reply Dr. Fan,
Can you please recommend a TCM clinic in Bangalore, India where I could visit to get the treament?
Thanks
Vijay
Blogging keeps me insane. Keep up all the positive work. I too love to blog. I found this one to be very informative
I enjoy, lead to I found just what I was taking a look for. You’ve ended my four day lengthy hunt! God Bless you man. Have a nice day. Bye
hye..good day..my son 2 years old is having GBS…he cant really work on 27 september 2011, diagnos he is GBS on 08 september 2011..he’s having pneumonia also which doctor diagnos on the 3 september 2011…on treatment immunoglobin(IVIG) 10 BOTTLES on 8 september 2011..2 days treatment..so far constipation is good..urine also good..is there any herb u recommend to make his recovery fast?…
Dear doctor,
My sister has been suffering from GBS for about 20 months . she has recovered significantly but not completely. She has low power in ankle,toes thumb , she cant bend.Could you please suggest some acupressure points
If could come, we will use acupuncture and herbology.
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First of all I would like to say awesome blog! I had a quick question in which I’d like to ask if you do not
mind. I was curious to know how you center yourself and clear
your thoughts before writing. I’ve had a hard time clearing my
thoughts in getting my ideas out there. I do enjoy writing however it
just seems like the first 10 to 15 minutes are generally lost simply just trying to figure out how to begin. Any suggestions or
tips? Cheers!
You may do some acupuncture treatments or use green tea which help the focus.
It might also be a good time to schedule a vacation for some
good ol’ R and R. Most of the doctors usually ask the patient
to do an X-ray so that they could determine the
cause of the pain and advise an appropriate medicine for it.
You should also know the type of back pain you are suffering.
Dr. Fan was trained in both Chinese medicine and conventional medicine, so the diagnosis is a basic training he had.
Dear Dr Fan,
Thanks for your blog.
I was diagnosed with chronic inflammatory demyelinating polyneuropathy.
I live in Sydney, Australia.
I do not have enough money to travel to USA to see you.
Do you have recommendations of a Acupuncture and Chinese Herbology doctor that I can see for treatment in Sydney, Australia?
Thanks.
You may look for a local TCM doctor to treat your condition. I could not figure out how is the best, you may read my blog “Who is the top acupuncturist or best Chinese medicine practitioner (doctor)? by Dr. Arthur Fan, in the Greater Washington DC” https://arthuryinfan.wordpress.com/2009/07/29/what-is-the-top-acupuncturist-or-best-chinese-medicine-practitioner-by-dr-arthur-fan/
Hi Con,
I am a registered and practicing Chinese medicine practitioner in Sydney. I came across this blog as I am going to start treating a patient with this condition. If you are interested, you could get in touch with me. I could let you know how I am progressing with my patient. From what I can see in Dr Fan’s blog, this condition is treated according to Chinese medicine pattern differentiation. I believe that I can help with this. Again, if you would be more convinced that I could be of help after seeing the progression with my patient, we could also wait for a few weeks before commencing your treatment. My email address is yanankim@gmail.com.
I hope this could be a great “chance” encounter for both of us.
Yours sincerely,
Ju-youn Kim
I am GBS patient since 2006. my all four limbs are very weak. I live in bhagalpur in bihar India. Plz help me sir…
[…] One of our members asked: ” Does ACUPUNCTURE have any real benefits to assist with recovery from GBS – specifically to do with helping the myelin sheath regrow quicker and helping movement of the lower limbs (ankles) return. I know it helps the nervous system but not sure if it’s suitable?” Acupuncture: Defined as: a system of complementary medicine in which fine needles are inserted in the skin at specific points along what are considered to be lines of energy (meridians). Treatments for nerve damage vary just about as much as the presentation, and go beyond the simple insertion of acupuncture needles. For example, specifically for nerve regrowth; Electroacupuncture (where electrodes are placed on the handles of needles) is one therapy used for loss of range of motion, sensation problems, and very stubborn pain. It is a very heavy treatment that helps steer or promote nerve growth, and can be used for neuralgia or chronic neuropathy in any peripheral nerve. Dealing with nerve damage is a challenge as everyone is different and will react differently to each treatment. Typically, those who seek treatment immediately from both East Asian and Western approaches see the fastest and most complete recovery, since an acupuncturist can use the knowledge of East Asian medicine to support the entire constitution of a person, while both specialties can work on the problem at hand. Here are two case studies of people with GBS and their results from acupuncture. […]